Special Needs Parenting
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From the Middle of it.
Some days feel really hard, here’s some thoughts from the middle of it
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Just Breathe
After weeks of allergic reactions, sleepless nights, and endless chaos, We are back. and I realized something: I’ve been living in a constant state of reaction. This is the story of one tired mama learning to slow down, breathe, and trust that God’s got the rest.
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TriCare Prime vs. Select: Choosing the Right Plan for You
Confused about Tricare Prime vs. Select? Here’s a simple breakdown of both plans, with real-life examples of how each one works for military families and what to consider during open enrollment.
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Another Specialist, Another Spike of Anxiety
Each new specialist brings both gratitude and fear. As we head to Dot’s GI appointment, I’m reminded how often motherhood means holding faith and anxiety side by side.
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Snapshots of Joy: Back to Music Class
Dot’s joy shines brightest in music. This week, we returned to music class—a place of giggles, shakers, and spinning songs. Watching her grab instruments, follow the beat, and light up with delight was my moment to hold on to this last week
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Routines Are Hard (But We’re Figuring it Out)
Routines sound great in theory, but in real life—especially with medical appointments, unpredictable days, and a busy baby—they can feel impossible. In this post, I share how we’re slowly building small rituals and finding a rhythm that works for us (even if it’s far from perfect).
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When a Fever isn’t “Just a Fever”
Sometimes a fever is just a fever. Sometimes it’s the first sign of something more. For us, that gray area meant a two-day hospital stay. From urgent care to the ER to finally getting the all-clear, this is what parenting a medically complex kid can look like—and why we sometimes have to err on the…
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What’s in My Hospital Bag (for Both of Us)
The other day, I started adding up how much time we’ve spent in the hospital—and realized that I’ve now spent roughly a third of my child’s life sleeping in hospital rooms. Not all at once, thankfully. But still. We’ve had long stays and short ones, and at this point, I’d like to think I’ve gotten pretty good…
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Silent Prayers and Stuffy Noses
Sometimes parenting a medically complex baby means holding your breath through the small moments. Here’s my heart in a quiet moment of prayer as I listen to my daughter struggle to breathe through a stuffed nose.
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Joy in the Journey
Life with a special needs infant is intense, unpredictable, and exhausting—but it’s also full of joy. Here’s how we’ve learned to celebrate the small wins, embrace the chaos, and trust God in every moment.